Can I Get a Witness?

Can I Get a Witness?

There is nothing passive about “witnessing.” It requires our full attention.

Witnessing isn’t the same thing as “watching,” or “seeing,” or “looking” or even “observing,” although they’re all in the same family. And it has a couple of niche meanings — unless you’ve managed to live your entire life without ever seeing a police procedural or reading an airport novel, you know that it is possible to “witness” a crime on a relatively passive basis: you just happened to be there when someone pulled the gun and fired, and now you’re “a witness.” But even in that context, there’s ritual around it. “Being a witness” to something implies you’re taking a certain level of responsibility for what you’re observing. We don’t “witness” a Simpsons episode; we watch it. We don’t “witness” that the weather forecast calls for sleet; that’s “noticing.”

BABEL AGAIN

BABEL AGAIN

We are living in an age of narcissism. I don’t even think that’s an “opinion” any more. We have relentlessly removed nuance, ethics, analogical thinking, meaningful debate, context and, hey — manners — from the cultural conversation. Trained by social media platforms to value the performative over the real, to take information at face value no matter how little sense it actually makes, to privilege rage and entitlement and punish sincerity, curiosity and “devil’s advocacy.”

What kind of sociopath installs a hall of mirrors without any warning or context?

Karaoke Night

Karaoke Night

Fun fact: the word “karaoke” is a Japanese portmanteau derived from the words Okesutura, or “orchestra,” and karappo, which means “empty” or “void.” Empty Orchestra. Factoid absorbed? Cool. Let that settle while I sing you a cheeky little tune that will most definitely not be dedicated to you, or your wife.

“I want more life, father.”

“I want more life, father.”

If you haven’t seen the original Blade Runner… well, that would suggest you’ve been locked in a basement since 1982, in which case neither the spoiler ahead nor Parkinson’s Disease are your biggest problems.

Roy Batty (played exquisitely by Rutger Hauer) isn’t just a psychopathic replicant. He feels. Intensely. He feels grief, and elation, and existential dread: he’s more human than a lot of actual humans. You could easily lift his lines from Blade Runner and drop them into an interview with anyone living with Parkinson’s, and the script…

CHEERS! Here's to Your Diagnosis!

CHEERS! Here's to Your Diagnosis!

Getting told at the ripe age of forty that I had Parkinson’s Disease kind of sucked, for reasons I hopefully don’t need to explain. You get a diagnosis like this and you can expect to drag yourself and possibly whoever is closest to you through a massive grief process, not to mention the revolving door of crises related to medical care if (when) you become incapable of holding down a conventional job. Sigh. It’s a lot to process.

"YOU AWAKE?"?

"YOU AWAKE?"?

This might sound obvious, but a key piece of the unique hell of insomnia is the feeling of detachment and isolation it often provokes. One bad night might not derange you, but much more than that without a break and you’re going to find the world has changed, and that you are now looking at it as if from under water or behind thick glass, a creepy, hyperreal-but-unreal “I live in a fishbowl” sensation in which people can see you but they cannot hear or understand you or connect with you in any meaningful way.

Advocacy in the Age of the Armchair Pathologist!

Advocacy in the Age of the Armchair Pathologist!

Have you ever been told you’re crazy? I don’t mean as a euphemism food or eccentricor “fun”. Have you experienced a person who is not your healthcare provider telling you and anyone who might listen that you’re “mentally ill” or “delusional” or “in need of help?”

How did that make you feel? Helped? Validated? Supported?

Yeah, me either.

Dear Fellow Humans...

Dear Fellow Humans...

My work in Parkinson’s awareness is not to be confused with that of a mad passive aggressive diarist. Oh, I’m mad, but my fight or flight response will wane when I get better. Only I’m not getting better and the last thing any PwP (person with Parkinson’s) needs is an ableist armchair psychiatrist punishing us for medical symptoms and side effects.

Posting Dead Letters

Posting Dead Letters

Somewhere in this house there exists an envelope containing letters I’ve written to ex-partners and friends. Some of these people are no longer living in this life; others are, for various reasons, just not in my life. Each unsent letter was written after break ups (or breakdowns) that left me gutted.

Attack and Dethrone God with Masks (or something)!

Attack and Dethrone God with Masks (or something)!

Fox News reporters describing their version of a liberal agenda can be a bit dramatic. I’m not sure we have enough time for that today but I would like to discuss how to keep the United in our States. Too late?


ABOUT LAST NIGHT

ABOUT LAST NIGHT

It was the big game and when my son needed me to show up, my body froze. 

Dear Human

Dear Human

There is no mask for grief.

In one day, the razor edge of it’s five stages will bleed you. Stealing health and security, grief rips through happy plans until we radiate with intense agony masquerading as anger.

Grief exposes everything, including the fearful in our midst (silver lining). It will terrify all who spin under the weight of society’s insistence that we “just be happy”. Such transparent expectations cause certain intimates to dash through the nearest exit when grief begins the next banshee wail. An impotent way to avoid their own sense of loss, but understandable.

“I love you but I can’t join you. Not in this level of darkness.”

This is a secret and pivate journey, so I can’t take you with me. If I choose to face this fear exposed, it may devour me. In the pitch black I listen for the sounds of children playing or the crackling glow of a new dawn.

Though our collective suffering is palpable, our souls cannot be crushed, and though this crumpled note is as unpleasant as an alarm with no snooze, there is one more thing:

The final step in grief is the wisdom of gratitude. My once brittle haunting has been replaced by untethered joy and wild revelation. This ease comes not from untested privilege or willful ignorance, but from losses that have been carved into my spine with unmercifully blunt objects. The grief may re-emerge, but this time I’ll know to greet it at the door, before the menacing shadow gallops carelessly into my relationship corner.

What gets destroyed is what we no longer need. Let this knowing to be a salve for your wounds.

The looped images preying on your sanity:

The crash, murder weapons unloading into flesh, the last breath, a scream no one can hear, that final awful word, the unanswered cry for help… these things will break your spirit if you pretend they don’t exist.

Around every corner such monsterous loss lingers, until we are brave enough to face it unarmed. Like that ex demanding closure, it’s easier to allow than block and will continue to show up at inconvenient times if we choose to distract or wish it away.

Have faith. This does does not refer only to the Christian version of faith, though Psalms from the Good Book is a timeless reminder of trusting the process.

“Yea, though I walk through the valley of the shadow of death I shall fear no evil…”

Rebirth is next in nature’s cycle. There is nothing we can do to halt seasonal tirades of creation or destruction.

My desperate avoidance of my most authentic dismantling and rearranging always leads me back to the beginning of the ordeal, intensifying suffering for all involved. I had no choice but to enter grief’s void.

Remember that even our golden sister Persephone did a stint in The Underworld. Love yourself in your grief and joy, equally. I’ll be waiting quietly wherever you emerge, in your technicolor glory, human.