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And what if your voice doesn’t hold up? Is voice to text the best option? Sometimes the answer is yes. If you’re communicating with someone who has a motor symptom disorder or neurologic disorder consider They do not have the same capabilities as you. It would be unrealistic to expect or demand frequency or level of communication as those who do not have a neurological disorder. Making up stories or assuming the worst of a PwP when you don’t live with loss of motor skills and just because they’re not communicating as you prefer is ABLEISM. It is a necessary to pressure anyone when we all know a movement symptom disorder can make communicating virtually challenging. You must allow for mistakes if you intend to maintain a relationship with someone in this situation. If you have any questions please just ask.  https://images.squarespace-cdn.com/content/v1/57d9894903596ed9a1cc1de1/1637573430572-IL79Y2340L765JHRMCTK/image-asset.jpeg Videos - Virtual Communication and PD What if you could not write text or type? And what if your voice doesn’t hold up? Is voice to text the best option? Sometimes the answer is yes. If you’re communicating with someone who has a motor symptom disorder or neurologic disorder consider They do not have the same capabilities as you. It would be unrealistic to expect or demand frequency or level of communication as those who do not have a neurological disorder. Making up stories or assuming the worst of a PwP when you don’t live with loss of motor skills and just because they’re not communicating as you prefer is ABLEISM. It is a necessary to pressure anyone when we all know a movement symptom disorder can make communicating virtually challenging. You must allow for mistakes if you intend to maintain a relationship with someone in this situation. If you have any questions please just ask.  https://images.squarespace-cdn.com/content/v1/57d9894903596ed9a1cc1de1/1637574061040-M9ZBXIHNXSW55T7U0PNP/image-asset.jpeg Videos - Ben & Heather "Between 2 Ferns" Two PwP talk candidly about DBS and living with an incurable chronic illness. Ben is the co-author of BRAIN FABLES. Heather is sleep deprived. Apologies to the original mighty and menacing _Between Two Ferns_ host, Zach Galifianakis! https://images.squarespace-cdn.com/content/v1/57d9894903596ed9a1cc1de1/1637573738855-B00GT81HBHB0NLBLXDU9/image-asset.jpeg Videos - Q&A about YOPD https://images.squarespace-cdn.com/content/v1/57d9894903596ed9a1cc1de1/1637573897282-61JMHYLRG8ZXDTEPTJCK/image-asset.jpeg Videos - A lesson from my dog  Life can get overwhelmingly busy. We are constantly pressed to do more at an increasingly frantic pace, yet rushing about or taking on too many responsibilities is no good for people with Parkinson’s. Faster? Going harder? Stronger effort? It’s not better for PwP. My dog is one of my greatest teachers https://images.squarespace-cdn.com/content/v1/57d9894903596ed9a1cc1de1/1626314935032-S4F6CTZ2LZR51QRQM8SM/image-asset.png Videos - 5 Things https://images.squarespace-cdn.com/content/v1/57d9894903596ed9a1cc1de1/1626314781406-PDR1486QUD9L8YXGI49F/image-asset.png Videos - Resistance and PD (unscripted per usual) https://images.squarespace-cdn.com/content/v1/57d9894903596ed9a1cc1de1/1626314849140-W2ZVNPFVNU3GIZXM6TFF/image-asset.png Videos - The Grief of Loss (Young Onset Parkinson's) https://images.squarespace-cdn.com/content/v1/57d9894903596ed9a1cc1de1/1623843800389-Z7HQU1PUFLTWJFPUCM07/image-asset.jpeg Videos - Comparison is useless https://images.squarespace-cdn.com/content/v1/57d9894903596ed9a1cc1de1/1622390859637-QR5ZNO1FBFCH1Z3H6BLE/image-asset.jpeg Videos - My favorite therapy for Parkinson's is... https://images.squarespace-cdn.com/content/v1/57d9894903596ed9a1cc1de1/1621469932151-RCSD04Z6ER7JQCYCT2X5/image-asset.jpeg Videos - Kid Wisdom https://images.squarespace-cdn.com/content/v1/57d9894903596ed9a1cc1de1/1620269201617-WLAUOSYA3VGBSVLN1DMN/image-asset.jpeg Videos - A reading of Jon Stamford's work https://images.squarespace-cdn.com/content/v1/57d9894903596ed9a1cc1de1/1619485813737-5MFBXK6OGT5MK3LHRSJ0/image-asset.jpeg Videos - On Lonliness & social isolation. An invitation... https://images.squarespace-cdn.com/content/v1/57d9894903596ed9a1cc1de1/1619485685635-WJE3CK78SOAG4FX269R9/image-asset.jpeg Videos - A slower dog is just fine! https://images.squarespace-cdn.com/content/v1/57d9894903596ed9a1cc1de1/1619485530498-URRAIMADNT6YSCWWI7WF/image-asset.jpeg Videos - Phoenix https://images.squarespace-cdn.com/content/v1/57d9894903596ed9a1cc1de1/1618617022723-AD6LLIWDRKEY9CLZPY0D/image-asset.jpeg Videos - DBS Surgery https://images.squarespace-cdn.com/content/v1/57d9894903596ed9a1cc1de1/1618421420436-TRREUUYSEX58ZV08EO8Y/image-asset.jpeg Videos - Day 1 - APDA Midwest Parkinson Congress I was honored to be the keynote speaker for the Midwest Parkinson Congress. My keynote address begins at the 5:10 mark here: https://youtu.be/j9BT_bg9ZbU?t=312 https://images.squarespace-cdn.com/content/v1/57d9894903596ed9a1cc1de1/1618415242777-NRYFIH9ZFUJ0KD0X6WHS/image-asset.jpeg Videos - Robe Talks Inspired by the work of Margie Rodgers and The Pema Chödrön Foundation, insomniac thoughts on how easy it is to slip into unconsciousness, addiction and other habitual patterns... and how we can do better. I used to think that if I fought hard enough against reality I might change it. This is an 11 minute talk about how I’m learning to dance with discomfort. This robe talk is brought to you by gratitude. https://images.squarespace-cdn.com/content/v1/57d9894903596ed9a1cc1de1/1618415147890-OPEMJCGCF0Q0A1V0DQTX/image-asset.jpeg Videos - Hi! Are you ready to see results of DBS Surgery Phase 2? Ready for Part 2 of 2 DBS Surgeries. Expectations include the alleviation of up to 50% of the worst symptoms, such as bradykineasia, dystonia and freezing and shorter OFF times. A note about off times: These minutes and hours can feel brutal- like a more permanent loss- but like everything else, they’re temporary. Keep moving THROUGH the rough times. You got this! https://images.squarespace-cdn.com/content/v1/57d9894903596ed9a1cc1de1/1616731646365-SWRPCZTTB8496OEYLV49/image-asset.jpeg Videos - Deep Brain Stimulation - Preparation https://images.squarespace-cdn.com/content/v1/57d9894903596ed9a1cc1de1/1555273943388-KJ24U7FK6WD2CHROJ45A/image-asset.jpeg Videos - A MOUNTAIN AT MY GATE: PD Unseen Are you Drunk? Can you hurry up? Why do you seem so sad? https://images.squarespace-cdn.com/content/v1/57d9894903596ed9a1cc1de1/1483655403001-QG5Y1IZ0FWG8LLVGZB43/image-asset.jpeg Videos - When you get diagnosed with Parkinson's #OneVoiceProject c. David Sangster https://images.squarespace-cdn.com/content/v1/57d9894903596ed9a1cc1de1/1492467950250-0MF0P6UIU5KYUFYM37QW/image-asset.png Videos - After Boxing Video preview by Anders M. Leines https://images.squarespace-cdn.com/content/v1/57d9894903596ed9a1cc1de1/1545278797072-OB43WDJJGKH7G0HBROBR/image-asset.jpeg Videos - WellumPhoenix - the Patient Perspective Video by Anders M. Leines https://images.squarespace-cdn.com/content/v1/57d9894903596ed9a1cc1de1/1474210417599-DP2WIQ44UJOFNFECRXVJ/image-asset.jpeg Videos - Kathleen Kiddo - Why? Parkinson's from the inside. https://images.squarespace-cdn.com/content/v1/57d9894903596ed9a1cc1de1/1545276772046-6UZYNQ2FEEYG4YBAXAKN/More+than+just+the+shakes.JPG Videos - Parkinson's Disease - It's "MORE THAN JUST THE SHAKES" A video from shakeitupaust. https:www.shakeitup.org.au https://www.youtube.com/channel/UC5HDgXQMzbn38tcIHrhcuKA https://images.squarespace-cdn.com/content/v1/57d9894903596ed9a1cc1de1/1545278853173-GNZEA9FM5XRSAOXXM4N1/image-asset.jpeg Videos - Hey! We have an incurable brain disease. We might as well sing. Video by Anders M. Leines https://images.squarespace-cdn.com/content/v1/57d9894903596ed9a1cc1de1/1573274261051-MHEURX237OGB2GYMGUQZ/image-asset.jpeg Videos - Atlantic Health Talk NJ Day of Hope in 30 minutes. https://images.squarespace-cdn.com/content/v1/57d9894903596ed9a1cc1de1/1573284268686-X3IW4O8PT5AZN9INP1C3/image-asset.jpeg Videos - Episode 4: The Patient's Experience - Matt Eagles, Dr Tapas Mukherjee, Vicki Dillon and Jon Stamford A few of my heros! https://images.squarespace-cdn.com/content/v1/57d9894903596ed9a1cc1de1/1573285842782-DRVRUPHXKJX2YDPD4V6S/image-asset.jpeg Videos - Little Big Things™ Austin Davis Phinney Foundation’s DYNAMIC event! https://images.squarespace-cdn.com/content/v1/57d9894903596ed9a1cc1de1/1573275346818-NU4KLBP7FR7SDO1HKVIL/18010098_453504228342733_5816512037165337270_n.jpg Videos - HNL Interview https://images.squarespace-cdn.com/content/v1/57d9894903596ed9a1cc1de1/1672334754423-E00TT1D0H33JBEASZ7ED/image-asset.jpeg Videos - Darkestbeforedawn@therealkathleenkiddo https://images.squarespace-cdn.com/content/v1/57d9894903596ed9a1cc1de1/1673972715371-D7E3VAP33XCE0YZOO1I3/image-asset.jpeg Videos https://images.squarespace-cdn.com/content/v1/57d9894903596ed9a1cc1de1/1675354048113-80DALQ7NA50645GPPZ1A/image-asset.jpeg Videos - Interview while "on" https://images.squarespace-cdn.com/content/v1/57d9894903596ed9a1cc1de1/1675354079334-W63SAXCCBNWNO0DT2UER/image-asset.jpeg Videos - Interviewing while "off" https://images.squarespace-cdn.com/content/v1/57d9894903596ed9a1cc1de1/1680012093099-KHVLPKESJWXYBIG7AIYT/image-asset.jpeg Videos - Parkinson's, not just an old person's disease. https://images.squarespace-cdn.com/content/v1/57d9894903596ed9a1cc1de1/1713208328933-Q2XEKROHPUFNBOYYBNR9/image-asset.jpg Videos - Not Just Parkinson's - Heather Kennedy Talks Art https://www.kathleenkiddo.com/dbs daily 0.75 2022-12-29 https://images.squarespace-cdn.com/content/v1/57d9894903596ed9a1cc1de1/1616426610980-QMQM791V53QLLN9F5LCP/image.jpg DBS - DEEP BRAIN STIMULATION READY? https://images.squarespace-cdn.com/content/v1/57d9894903596ed9a1cc1de1/1616426610980-QMQM791V53QLLN9F5LCP/image.jpg DBS - DEEP BRAIN STIMULATION READY? https://images.squarespace-cdn.com/content/v1/57d9894903596ed9a1cc1de1/1616784664441-BGAXTUDAHZQE0XL1HWVL/HKKK_BUZZ_by-Lisa-Foote-9820.jpg DBS https://images.squarespace-cdn.com/content/v1/57d9894903596ed9a1cc1de1/1616769463155-DCMVCE6N8S9EB23QU75B/HKKK_BUZZ_by-Lisa-Foote-9809.jpg DBS https://images.squarespace-cdn.com/content/v1/57d9894903596ed9a1cc1de1/1616769735863-5TNP8M4JEYAKKUQSMK9I/HKKK_BUZZ_by-Lisa-Foote-9805.jpg DBS https://images.squarespace-cdn.com/content/v1/57d9894903596ed9a1cc1de1/1616770638865-RGSGMCTN6XSQTF39JOYC/HKKK_BUZZ_by-Lisa-Foote-9832.jpg DBS https://images.squarespace-cdn.com/content/v1/57d9894903596ed9a1cc1de1/1616770637885-ZPC4U8UEEI6RREAPEJ8K/HKKK_BUZZ_by-Lisa-Foote-9830.jpg DBS 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