“The drugs don’t work, they just make you worse...”

Often, medications don’t work, and we cannot just “Snap out of it!” Thanks for saying I look fine, but that’s not particularly helpful.

Making plans and getting places quickly can be difficult, since we cannot anticipate when or for how long our bodies will refuse to work.

I feel the pressure to balance work and schedules against inevitable off times. Nothing happens in a vacuum.

Yes, I’m pretty happy, but no longer capable all the time. I cherish those who take the time to discern a symptom or side effect, rather than personalizing everything. What a drag! PwP have enough to deal with!

https://www.facebook.com/kathleenkiddo/videos/604402529919568/