When a close friend died my mother sent me CS Lewis’s A Grief Observed, which helped soothe the excruciating experience of such loss.
This book was recommended by a Berkeley teacher who works with unresolved grief and I hope you get your hands on it if you are going through tough times that include overwhelming losses.
There is constant loss when you have or live with progressive disease. Remember during the holidays to be gentler, do less, and be ready for those unexpected waves of grief.
Holidays can be rough because memories will flood in like blood from that elevator in The Shining. We can all get thrown into the chaos and emerge exhausted, weepy and despondent.
Stay connected and aware that this is normal. It’s going to be OK.